Benefit for Baby Harbor Seeley

Baby Harbor Seeley.

Harbor Seeley, son of Kristin Seeley of Edmunds, was born on May 6th, 2018 at DECH and was transferred to EMMC the following day due to a blood infection, where he and his mother stayed for over a month in the Neonatal Intensive Care Unit until late June. During the stay, Harbor’s medical team diagnosed him with CHARGE Syndrome, a rare disorder that affects many areas of the body, including coloboma of the eyes, heart defects, abnormal growth and many other health problems. Harbor carries many of these including deafness. Children with CHARGE Syndrome can thrive and live happily even through adulthood, depending on the severity of their conditions. 

Harbor was only home for a brief period before he fell into congestive heart failure. Harbor was life-flighted back to EMMC where he is currently. Harbor is underweight, another expected symptom of CHARGE Syndrome, and being fed a high-calorie formula through a nasogastric tube.  He will be having open heart surgery once his doctors are comfortable with his weight and condition.

Harbor’s records have been sent to Boston Children’s Hospital to schedule heart surgery in August, when his condition is stable. This surgery will help him tremendously and he will thrive once recovered.

There will be multiple follow up appointments and future travels for Harbor and his family. At the early age of two months old he already has a pediatrician, cardiologist, audiologist, physical therapist, ophthalmologist, neurologist, and a nutritionist. This knowledgeable team will benefit Harbor’s well-being and Kristin feels confident in all of them. But as the community is all too familiar with, traveling 2+ hours to and from these appointments have caused a financial burden on Kristin and her family.

Family, friends and the community are raising money to support Kristin’s stay at the hospital and to assist care for her two-year old son, Lucca, Harbor’s older brother. Donations and funds go directly to Kristin to assist travel, meals and care for Lucca while she is in the hospital with Harbor. Harbor does not yet have a surgery date nor an estimated date for his recovery due to his extensive treatment plans.

A spaghetti supper and Chinese raffle will be held at Edmunds Consolidated School on Saturday, July 21st. Doors open at noon time for the raffle and the dinner will be served at 5 p.m. Dinner is free of charge – donations excepted. All are welcome!

 

Anyone with  questions regarding the supper or donations, may call Jordyn Turner at 207-214-1575 or Shelby Seavey at 207-263-8919. There is also a public Facebook Event online to view.